Thursday, January 7, 2010

John Michael at 26 months old



Next week is John Michael's 6 month IFSP meeting. 

In preparing for the meeting, his Teacher prepared a draft report for me to review before the meeting.  All in all, I'm thrilled at how well he's doing and all the things he's learning right now.  He seems to be having a major language growth spurt, in addition to his cognitive and motor skills.  Language is especially an area where he is clearly trying to communicate more by pointing, signing, making sounds, sometimes using word approximations, or just going to the object he wants and getting it.  Sometimes, we can't figure out what he wants or what he's pointing to, which makes us both a little frustrated.  Which is why we are increasing our Speech Therapy from 2x/month to 3x/month.  It has been recommended by a speech therapy evaluation last month that John Michael receive ST weekly now.  I'm still wrestling with the idea of adding more therapy to our schedule, but I think this is where his biggest learning is happening right now.  And it's important to meet him where his interest lies.  If the ST's schedule opens up more, we can go to 1x/week.

Reading the report, my heart always sinks when I read the relative age of where he is right now.  For instance, his fine and gross motor skills fall in the 14 to 18 month range.  I think he's doing amazingly well, especially considering his first year was spent on the floor or sitting on his bottom.  He didn't start crawling until the week after he turned 1 and it took most of his 2nd year to learn to walk.  When you compare him to a typical child, yes, he's just starting to catch up to the 18 month olds, but that doesn't bother me.  I think the numbers are annoying for comparison because our children will always "seem" behind when compared to the typical chart, and since he does have Down syndrome, I often wonder how he's doing compared with other kids who have Ds.  That would be a better indicator to me. 

Last month at the Down syndrome clinic, the doctor there told me that it's important for John Michael's height, weight, and head circumference to be marked on the Down syndrome growth chart.  I always was thrilled that he was on the typical chart for height and weight, but Dr. W. told me that kids with Ds follow a different growth curve and that it's important to note that John Michael is following the Ds curve rather than "falling off" the typical growth curves. 

Cognitive:  "According to the IDA, HAWAII (developmental indicator), parent report and teacher observation, John Michael is demonstrating skills in the 18-24 month age range."  To me, this is awesome!  He's 26 months old physically, and cognitively is just behind where other kids might be.  He understands so much and follows through with simple commands.  He rights books and pictures and usually figures out how something works without having to be shown.  I love that his attention span is growing and he can do complicated learning toys for a good length of time without frustration. 


Gross Motor:  You should see this kid walk FAST, almost jogging, climbing ladders (not that we let him...), spin in circles because his older brother showed him how and it makes him giggle, ballroom dance with Greta, rock out at the first sound of music or pretend he's singing into a microphone.  Climb into and out of chairs, climb up steps and go belly down backwards.  He's throwing, bouncing or rolling a ball in the direction of the person catching most of the time.

Fine Motor:  I started giving John Michael a fork or spoon at every meal since he no longer flings his bowl or plate off the high chair.  That was a pain!  He seems genuinely interested in self-feeding with utensils.  We still feed him breakfast cereal, his fave is Raisin Bran right now, so he doesn't spill the milk, but he can spoon thick soup, pudding, yogurt, thicker oatmeal, applesauce and softer ice cream.  With a fork, he doesn't scoop his food yet, but as long as it can be poked, like scrambled eggs or cut-up hotdogs, etc, he can do it.  He was on a breakfast eating strike for a while there.  Nothing appealed to him, so I gave him a spoon for his oatmeal and he started eating.  Whatever works... 

Like I said, all in all, everything is going very well here.  We are so fortunate with his health as some of his buddies have had open heart surgery and one has had Leukemia when he was younger.  I am enjoying life with this little guy and am convinced that he has taught me more about life, love, and compassion in his short 2 years than any other person in my life at any time.  It's an amazing journey, really.  I'm enjoying being a peer counselor to other moms who are just learning of their prenatal diagnosis of Ds for their baby as well as meeting new moms to babies with Ds.  I think this is the direction I'm headed for the future.  I can't say for sure how it will all pan out with another baby on the way, but my life's vocation becomes clearer each day.

Stay tuned to find out if John Michael will be a big brother to a baby sister or brother.  We find out on the 25th.  Happy New Year!

18 comments:

  1. i think john michael is awesome, wonderful, adorable, etc! i hope one day he and henry can meet. i think they would make good penpal buddies.

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  2. John Michael always amazes me... as do you, Monica :)

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  3. Wow, sounds like he is doing fantastic Monica!! That little smile of his is darling! Can't wait to find out if he will have a little brother to rough around with or a little sister to protect:)

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  4. He is doing really well. Amazingly well. Luke sounds very similar at 23 1/2 months, but is not walking. Everything else except walking...

    Good luck on the baby front :)

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  5. sounds like he is doing great! What great accomplishments! Way to go little guy! Dont let it bother you when he "falls" behind b/c although it will happen our little ones will do it all but just at a different pace (the perfect time for them)....at his pace not his friends or anyone else's. Can't wait to find out what you are having!

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  6. Such an awesome kid! And I am way behind on my blog reading, I had no idea a sibling was on the way! Congratulations!

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  7. He is amazing! Look at him go! I love reading posts like this. It makes me feel like Justin will hit these milestones too... it will just take time! Can't wait to find out what you're having!

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  8. John Michael is really going wild! He is doing so much. I'm so happy for you! I totally don't get hung up on how Em is developing compared to a typical child either. I really thought I would but for once I don't have issues. our kids are just so much fun and bring so much joy, it really doesn't matter. It will all come in time.
    BTW how are you feeling...Mama?
    waiting to hear the girl/boy news!

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  9. I feel so happy to hear John Michael doing so well! In a way, some of the things you describe him doing are very similar to the learning spurts that Matthew has/ is experiencing. (Although we're struggling with speech).
    Looking forward to hear if he'll have a baby sister, like Matthew will, or a baby brother.

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  10. sounds great I am curious to see what his next break through will be

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  11. I don't know how I missed the news that you were expecting... Congratulations! Can't wait to find out if it is a baby sister or brother :) John Michael is doing so well... I loved reading all that he is doing! So happy for you guys!

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  12. He's happy, healthy and making strides! Awesome!

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  13. Wow, so many great things to read about that John Michael is doing! Keep up the great work and congrats on a new little one!! :) So many great things!

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  14. How much do I love that pic?! A lot! I'm excited to find out if John Michael will have a brother or sister :)

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  16. Monica, I am sitll here! It is so inspiring to read about children older than Kamryn and know that it is OK! He is so cute and is doing fantastic! Thank you for sharing...it helps! xoxo Andrea

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